SXSW 2021
How do you Protect your DNA?
Description:
As our world continues to digitize, we have created measures to protect our cyber privacy and data. We know to delete phishing emails, we create difficult passwords, we condemn companies where there are data breaches, and we know to be weary of how we share private and financial information online. But are we taking those same precautions when it comes to science and our own healthcare?
While genomics has revolutionized medicine, these discoveries also bring about issues of privacy and patient autonomy. And as genomics continues to be a foundation for scientific and medical innovation, these concerns are not going anywhere. Like many things in our technologically advanced world that keep changing at lightning speed, how does science, ethics, and the law keep up?
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Takeaways
- What does privacy and security currently look like with genomics?
- What are some of the biggest privacy and security issues within genomics that we should be talking about?
- What are the top things, as a patient, you need to know about your genomic information to best protect yourself?
Speakers
- Lawrence Brody, Director, Division of Genomics and Society, National Human Genome Research Institute
- Benjamin Berkman, Deputy Director, Bioethics Core, National Human Genome Research Institute
- Elena Ghanaim, Policy Analyst, National Human Genome Research Institute
Organizer
Sarah Bates, Chief, Communications Branch, National Human Genome Research Institute
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