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Social Media: The RX for Improved Adherence?

Event Interactive 2011
Format Dual
Organizer Jody Schoger – Women With Cancer
Description Tamoxifen and aromatase inhibitors, hormonal therapies used to treat hormone+ breast cancer are proven to decrease recurrence rates by as much as 40%. An ASCO study released June 28, 2010 demonstrated that fewer than 50% of women complete the entire course of recommended treatment (generally 5 years). The lowest adherence rates were in women under 40, who may have a higher risk of recurrence simply because they have longer to live. The point is not whether or not a breast cancer survivor should take hormonal therapy, rather that a very large gap exists between the experience of taking the medication and the support needed to do so successfully. To address this gap, we are developing “What’s Best for Me,” a social media program that provides support, information and motivation for breast cancer survivors receiving hormonal therapy. It begins as a blog and will grow to include posts from survivors, clinical commentary, a peer supported forum, and aggregated feeds of hormonal therapy conversations on the social web. Data that will help HCPs and pharma improve adherence will be gathered to help improve health outcomes and generate income for further development. Advocacy and a passionate desire to help empower women for the best possible chance to beat cancer has led me to this compelling problem, and the desire to develop a solution. "What's Best for Me," would be a huge step forward. Thank you for your consideration.
Questions
Answered
  1. Can listening to peer support help healthcare practitioners and pharma better understand the patient story and support them successfully through treatment?
  2. What data do HCPs and pharma need to help improve adherence to long-term hormonal therapy in breast cancer survivors
  3. What is the most effective format for measuring patient understanding of side effects?
  4. What can HCP's learn about adherence by listening and participating in patient forums?
  5. What social supports do breast cancer survivors need to better understand the benefits of hormonal therapy?
Level Beginner
Category Health
Tags adherence , cancer, compliance
HELP