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Health Communities: Superheroes Who Need a Justice League

Event Interactive 2011
Format Solo
Organizer Jennifer Prokopy – ChronicBabe.com
Description Research shows online health communities (OHCs) offer extensive benefits to members. But the variance in quality and effectiveness is huge. And Pew Internet research shows only 52% of adults with multiple chronic illnesses go online for health information. A good OHC has the power to change lives. For many people, the worst day of their life is when they’re diagnosed; OHCs can provide respite, education and empowerment when members otherwise would feel alone. There’s as much demand for, say, an OHC on Raynaud's Phenomenon as there is for one on knitting. Yet while Ravelry is bustling, gorgeous and easy to navigate, good luck finding a useful forum about life with cold toes and hands. OHCs could be better. They need a governing board, or a set of principles to aspire to follow. I would lead a presentation on: Strategies for helping OHCs get around black hat SEO so they’re easier to find, especially by novices; Ways OHCs can partner with hospitals or other organizations, avoiding conflicts of interest while capitalizing on their financial stability and resources; Techniques for teaming with non-profits to extend reach; Ways to reach under-served populations, including people of color, families below the poverty level, rural communities and the aged; How to keep members long-term using better I.A. and usability; Using strategies of the biggest OHCs for niche OHCs.
Questions
Answered
  1. What makes a kick-ass, sustainable online health community?
  2. How can online health communities better reach, serve, and keep their members for the long run?
  3. How can online health communities partner with for-profit organizations (like big pharma or hospitals) to share resources and strategies while avoiding conflicts of interest?
  4. How can niche online health communities be nurtured to provide the same level of empowerment as the biggest, most successful communities?
  5. Is it realistic to envision a larger body that could guide the formation of online health communities and set standards for their operation and maintenance?
Level Intermediate
Category Health
Tags Community/Online Community, Non-profit, Strategic Planning
HELP