SXSW 2012 - Health Data Everywhere: Not a Drop to Link?

Health Data Everywhere: Not a Drop to Link?
Event	Interactive 2011
Format	Panel
Organizer	Indu Subaiya – Health 2.0 / Developer Challenge
Description	The Health 2.0 and Open Gov movements have helped unlock large repositories of data - from user-generated data in hundreds of online communities to mobile devices to federal quality indicators to medical record data within provider organizations. But much remains to be done to connect these disconnected islands of data to generate information that's meaningful and actionable by end users. And what happens when you link informed patient communities with their health data? As Clay Shirky says, it gets weird. And interesting. A number of communities have cropped up to promote access to medical data and the integration of user-reported and behavioral data within the clinical decision stream including healthdatarights.org, #healthapps, #health2dev, #73cents, #getupandmove and #WhyPM. With the opening up of health datasets, platform APIs and increasingly sophisticated analytic engines to make user-generated health data clinically relevant, we can finally unleash the wider developer community to build robust and integrated tools to improve health and healthcare. This session brings together some of the leading voices in the Health 2.0 movement to discuss and demo technologies that help access, mine, display and distribute control of health information across a wide variety of interfaces and devices. We will also hear how government is opening healthcare datasets for access by the developer community and how patients are increasingly becoming "n of 1" platforms.
Questions Answered	What is the government doing to open healthcare datasets for the developer community and how and where can you access them? What resources are available to tech companies and healthcare organizations to share their health platform APIs and datasets to stimulate further application development? How are unstructured conversations in online communities and other user-generated health data being aggregated and mined for clinical use and public health reporting? How can open source, modular platforms be built to ensure that data can be shared across various disease communities? What are some of the most disruptive health apps available to consumers today and what are the latest trends in the use and impact of these applications?
Level	Intermediate
Category	Health
Tags	health2.0, OpenGovData, user-generated content

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Health Data Everywhere: Not a Drop to Link?